About us
Who we are
MR. MARTIN BOAKYE FOUNDER OF G.He.S.
We are a team of change-makers who believe that every helping hand can break the chain of hemophilia and create a better future for those living with hemophilia.
In 1998, the family of Boakye (Mr.) painfully lost their four-year old son to haemophilia. The boy until his death had gone through various painful experiences because of the symptoms of a bleeding disorder. There was no known treatment to reduce the pain let alone cure the suspected disease until one day the inevitable happened; he died through a minor head injury that led to internal bleeding. In March 2003, a second son was born, Papa Kwadwo Boakye, and was suspected to be a haemophiliac. He was supported with plasma and cryoprecipitate. Anytime an incident arose, his condition worsened by the day. In the year 2004, Papa was sent to the USA for medical diagnosis, since diagnoses was non-existing in Ghana by then. At the Beth-Israel Hospital in New Jersey, USA, Papa was diagnosed to be acute haemophilia B. In the hospital, Mr. Boakye was educated on the impact of the disease and the consequences of lack of care and treatment. A haemophilia nurse; Ellen, introduced Kelly Laurie, President of LA Kelly Communications to Mr. Boakye. Her organization operates project Share, which supports patients with bleeding disorders in developing countries through the donation of factor concentrate. Kelly suggested starting a non-profit society in Ghana. Eventually Ghana Haemophilia Society was formed and registered in 2005. It was officially inaugurated in April 2009 with Mrs. Kelly Laurie, the patron and the guest of honor. The society has also gained recognition and membership from the World Federation of Haemophilia, (wfh.org) Canada.
Our approach
Our Mission
The mission is to reach out to every patient with care and treatment through advocacy, drug sourcing, education and capacity building and awareness creation
Our Vision
The vision of the Ghana hemophilia Society is to reach out to every patient with care and treatment
Our entire team in collaboration with the local healthcare providers and governments is determined to ensure that more people with inherited bleeding disorders have reliable access to safe treatment and care. GHS wants to see a world where everyone struggling with hemophilia gets the proper care and assistance with education, jobs, and more.
OUR PROJECT PARTNERS
The way forward
Our vision is to break the chain of hemophilia where all people with inherited bleeding disorders have access to care, regardless of their type of bleeding disorder, gender, or where they live.